2 Nov 2026

Digital Pain Assessment in Dementia: The DIGITPAIN Research Project Investigates Practical Applicability in Long-Term Care

Photo: A woman is holding a smartphone and taking a photo of an elderly man
People with advanced dementia are often only able to express themselves through non-specific behavioural changes such as restlessness, defensiveness or withdrawal. It is not uncommon for pain to go unrecognised or be misinterpreted. Digital technologies such as the PainChek® pain assessment app can offer a solution here. © PainChek Ltd / AI generated
Photo: A person is holding a tablet and looking at the data displayed on it
Researchers at the HSBI, in collaboration with various healthcare organisations, are aiming to find out, as part of the DIGITPAIN research project, how well such tools can be integrated into the already demanding day-to-day reality of care. © PainChek Ltd
Photo: A hand is holding a smartphone and using it to take a photo of an elderly woman
The app combines the use of artificial intelligence to detect facial muscle activity indicative of pain with a care staff observation log, and uses this information to calculate a pain score and a pain level. © PainChek Ltd
When people develop advanced dementia, they often lose the ability to communicate effectively through speech. In such cases, it is a major challenge for caregivers and medical staff to recognise pain in a timely and reliable manner. Since those affected can often only express themselves through nonspecific behavioural changes, such as restlessness, defensiveness, or withdrawal, pain in older adults frequently goes unrecognised or is misinterpreted. Digital technologies, such as the PainChek® pain assessment app, can offer a solution here. Researchers of HSBI, in collaboration with various healthcare facilities, aim to determine how well such tools can be integrated into the already demanding daily routine of caregiving as part of the “DIGITPAIN” research project.

Bielefeld (hsbi). The project, whose full title is “Feasibility of digital and technology-based pain assessment in non-verbal people with dementia and technology acceptance among nursing staff in inpatient long-term care,” is funded by the Federal Ministry of Research, Technology and Space (BMFTR) with just under 90,000 euros as part of the DATIpilot programme. During the 18-month project period, Hochschule Bielefeld – University of Applied Sciences and Arts (HSBI) will collaborate closely with the von Bodelschwingh Foundation Bethel. The Australian company PainChek Ltd. serves as the technology partner. The project leader at HSBI’s Faculty of Health is Prof. Dr. med. Rena Amelung, with Dr. Olga Grintsova, MPH, serving as her deputy.

From validation to real-world care settings

Photo: Prof. Dr Rena Amelung, MD, in conversation with a nurse

The DIGITPAIN project builds on a validation study that was completed at the end of 2025. In that study, HSBI was able to confirm the scientific reliability of the German version of the PainChek® app for people with dementia. The app combines use of artificial intelligence to detect facial muscle activity indicative of pain with an observation protocol from nursing staff to generate a pain score and level. DIGITPAIN now focuses on the crucial step from theory to practice: it investigates whether and how the digital solution is being adopted in the actual day-to-day reality of long-term care in Germany. The focus is deliberately on technology acceptance and implementation barriers from the perspective of nursing staff.

Six-month field trial 

The centrepiece of the project, which officially kicks off on 17 November 2026, is a six-month pilot phase at three inpatient long-term care facilities in Bielefeld, scheduled to begin the implementation phase in March 2027. During this phase, nursing staff will use the PainChek® app to independently assess pain in residents with moderate to severe dementia without intervention from the research team.

The pilot phase will be supported by a scientific “mixed methods design”: before and after the pilot phase, detailed questionnaires will be completed and interviews will be conducted with nursing staff and physicians. To ensure the quality of the digital pain assessment, pseudonymised care data will also be analysed – including changes in pain medication, the frequency of falls and hospital admissions.

A model for all of Germany?

The overall goal of DIGITPAIN is to develop a practical implementation concept that demonstrates how digital pain assessment can be seamlessly integrated into existing workflows. The participating long-term care facilities of the von Bodelschwingh Foundation Bethel serve as a model region. The concept developed there is to be adapted so that it has the potential to be scaled up to the approximately 11,000 long-term care facilities throughout Germany. In this way, the project could make a key contribution to improving health care for people with dementia.  (vku)

Foto: Eine Pflegefachperson trägt ein Tablett in einem Behandungsraum

Experience the PainChek® app first-hand at the Wissenswerkstadt Bielefeld

On Thursday 5 November 2026, the project will be presented from 6.00 pm to 7.00 pm as part of the GENIALE event at the Wissenswerkstadt, in the ‘Ageing’ series under the title ‘Technology for the Medicine of the Future’.
Register at https://wissenswerkstadt.de/altern

Further Information

The DIGITPAIN project is funded by the Federal Ministry of Research, Technology and Space (BMFTR) with just under 90,000 euros as part of the DATIpilot programme from 1 September 2026 to 1 March 2028 and within the DATIpilot Module 2 Community Sprint in the ISyCARE (Integrated Sociotechnical Systems for User-Centered Care).

The ISyCARE innovation community is one of 20 funded innovation communities in Germany that are receiving 5 million euros over four years under the DATIpilot funding guidelines of the Federal Ministry of Research, Technology and Space (BMFTR). The goal of DATIpilot is to accelerate the transfer of technological and social innovations and to specifically strengthen Germany’s innovative capacity. The focus is on innovation communities in which stakeholders from academia, industry, civil society and government work together on future-oriented solutions to pressing social and economic challenges.

Faculty of Health 
Press release HSBI Tests AI-Enabled PainChek® App for Improved Pain Assessment and Outcomes in Dementia Care

 

 

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